home time

After over 600 days in hospital- Jaylen is home with his Mum. Katie is adjusting a somewhat normal life for the first time since she was first told of complications early into her pregnancy with Jaylen. We talked today about what she has been through, what she is still going through and her regrets. It's pretty incredible to have someone be so open with me and so willing to have her story told. At this point Jaylen is healthy and will be in hospital 2 days a week for TPN feeds. He will need more surgery, is still peg fed, and of course nothing will be "cured" unless he undertakes risky transplant surgery which is unlikely. Jaylen at home is a completely different baby- he is curious, strong and full of life.

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