A day in the life

I'll be spending a few fuller days with Katie over the next week, showing exactly what a day in her life is like. Yesterday she bathed Jaylen, changed his dressings, took him into hospital for a procedure and then brought him home to connect to his machine for feeds. Katie told me she was both proud and heartbroken that Jaylen has now learned to walk over to the buckets she has placed around the house when he needs to vomit which can be as much as 4 times a day. On this day he had been sick the night before and had lost almost half a kilo. In spite of that, Katie told me it was still  a" good day" for them

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