july 2014

Home TPN has started for Jaylen this month which means a lot less time in hospital but a lot more care for Katie. She has set up his room as a mini medical station with everything he needs for his nightly connection. I was really worried about what this would mean for her- it's another huge step away from a normal life. But as usual she is coping- her biggest worry on this day was that her house is now overtaken by toys in the living room in an effort to keep Jaylen's bedroom sterile. She will be 23 this week, I cannot believe how much has and also hasn't changed since I met her 3ish years ago.

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